Help and Support
Bringing up a family that includes a child with a disability is very demanding and it is easy at times to become overtired and overloaded, which might lead to health and family problems. There are people who can provide excellent specialist help. We hope the following lists of contact names and addresses will be helpful. Other information can be obtained from Social Workers, Health Visitors, etc.
Wolverhampton Information, Advice and Support Service
The Wolverhampton Information, Advice and Support Service (formerly known as the Parent Partnership Service) is a vital source of information and support for local parents and carers whose children are identified as having special educational needs or where there are concerns about their progress in school.
Services offered include:
- A telephone helpline and a confidential listening ear
- Individual casework support. This may be via our helpline, home visits, and meetings at the Gem Centre.
- Information about how schools and the Local Authority support children with additional needs
- A range of information relevant to SEN and disability
- Events and learning opportunities
Contact: 01902 556945
Helpline and General Service Number: 01902 556945 / 555860
Exclusion Helpline: 01902 550396
Website: Wolverhampton Information, Advice and Support Service
Inspire (previously known as The Community Learning Disability Team for Children and Adolescents) is a multi-disciplinary team consisting of Psychologists, Nurses and Social Worker. The team specialises in helping families who have a child with a learning disability to solve problems to do with the child’s health, ability to communicate or mood.
Parents/carers can be referred to the service by Drs or by school for help and support, at: Inspire, The Gem Centre, Bentley Bridge Business Park, Neachells Lane, Wednesfield, Wolverhampton. WV11 1UP
Disabled Children and Young People's Team
This service is there to support families and provide Short Breaks through Direct Payments and private providers. We try to ensure that all children are registered as disabled on entry, this enables them to apply for particular benefits and to access this service.
The team is based at the Gem Centre and families can refer themselves for an assessment by a Social Worker for Short Break Provision.
Telephone: 01902 550911
Short Breaks and Holiday Provision
There are many schemes and services to support families of disabled children; from playschemes to overnight stays. There are also two caravans available for families to hire for a holiday with their disabled child.
More information can be obtained from the Disabled Children and Young People’s Team.
Down’s Syndrome Association
For details of local contacts and support groups, parents are advised to contact the national office.
Their helpline is open from 10 am Until 4 pm on weekdays. The number is 03331212300.
The website link for Down syndrome:www.downs-syndrome.org.uk/
Wolverhampton Family Information Service is a free, confidential and impartial information service for parents, carers, children and young people living in the City of Wolverhampton. Every local authority has a Family Information Service.
It is an independent organisation and can provide information on childcare and other related information for the whole of the Wolverhampton area.
Telephone: 01902 554242
Advice and Support
Action for Children
Action for Children supports and speaks out for children and young people. Its services include family support, children’s centres, short breaks, advocacy and early years’ support. www.actionforchildren.org.uk
Contact a Family
Provides support, advice and information for families with disabled children. www.cafamily.org.uk
Provide services for people with learning disabilities and people with autism. Offer a range of services to young people and adults of all ages, including those with complex needs or challenging behaviour. www.dimensions-uk.org
Helps families with severely disabled or seriously ill children and young people aged 17 and under to have choices and the opportunity to enjoy an ordinary life. Families can apply for grants for their children. www.familyfund.org.uk
Scope and Netbuddy have joined together to set up a new online community for people connected by disability on the Scope website. www.netbuddy.org.uk
Ring and Ride
(West Midlands Special Needs Transport) For those who find it difficult or impossible to use conventional public transport. Tel: 01902 425788
Scope – Face 2 Face
Schemes operate across the UK. Anyone living in the area, whose child has been recognised as having a long-term disability, may use their local scheme. It is not necessary for a diagnosis of any condition to have been made. www.scope.org.uk
Syndromes Without A Name (SWAN) UK
is a project run by Genetic Alliance UK offering support and information to families of children with undiagnosed genetic conditions. undiagnosed.org.uk
A website that is a meeting place for all people who care about autism – who want to raise awareness, share information and ideas. The Autism Awareness website was launched as part of Autism Awareness Year 2002 (AAY) – somewhere people could go to share ideas and information and to plan action. www.autism.org.uk
Newlife Foundation for Disabled Children
A charitable organisation caring for disabled and terminally ill children. It provides a national helpline of support and information, a live nurse chat function, equipment to help individual children, nurse-led services, medical research, awareness and campaigning. Its Just Can’t-Wait service for terminally ill children and their families provides fast access to free equipment. www.newlifecharity.co.uk
Autism Parent Support
A website created BY parents FOR parents. Parent quote “This site is all about the parents/carers of children and young adults with Autistic Spectrum Disorder (ASD) having a ‘place of their own’ where they can share experiences, advice and – via our chat page – laugh, cry, ask for help or even have a moan!!! You are NOT ALONE!” www.autismparentssupport.org
Autism West Midlands
Aims to improve the quality of life for people with autistic spectrum conditions and their families. www.autismwestmidlands.org.uk
Fledglings is a charity that helps parents and carers of disabled children and those with additional needs to find solutions to practical problems of everyday living. www.fledglings.org.uk
Downs Syndrome Association
Provide information and support for people with Down’s syndrome, their families and carers, and the professionals who work with them. www.downs-syndrome.org.uk
IPSEA (Independent Parental Special Educational Advice)
Provides free legally based advice to families who have children with special educational needs. Tel: Freephone: 0800 0184 016
Advice and information on epilepsy. www.epilepsy.org.uk
A directory of grants for the disabled including grants for disabled children, disabled adults, Carers, disability groups and much more. Created by a parent of a disabled child with Cerebral Palsy who wanted to share their experiences and knowledge www.disability-grants.org
Mencap is the voice of learning disability. Everything we do is about valuing and supporting people with a learning disability and their families and carers. www.mencap.org.uk
The Coram Children’s Legal Centre
The Coram Children’s Legal Centre offers free legal advice on family, child and education law including advice on school admission appeals and exclusions. The service provides online access to legal factsheets, a virtual assistant to help you find relevant guidance, web-chat advice with a legally trained advisor (9 am to 6 pm Monday to Friday), and telephone advice (8am to 8pm, Monday to Friday). www.childrenslegalcentre.com
Brickkiln Community Centre
Based in Brickkiln Community Centre at Cherry Street, Off Brickkiln Street, Wolverhampton, WV3 0QW, the sensory room, designed with the help of our local parent forum Voice4Parents, provides relaxation, fun and play for children and young people with additional needs and their families. To book the facility or to find out more please telephone 01902 555904.
If you are in receipt of Disability Living Allowance, Attendance Allowance or you or you child is registered blind, you are able to apply for a Cinema Exhibitors’ Association Card. it is a national card that can be used to verify that the holder is entitled to one free ticket for a person accompanying them to the cinema. There is an administration charge of £5.50 for the Card, which lasts for one year. Visit www.ceacard.co.uk or www.cinemauk.org.uk for further information.